Disability & Housing Narrative Change Cohort Sam Johnson Muncie, IN
An animated picture of Sam Johnson, a light-skinned person with brown, curly, shoulder-length hair, wearing glasses, a blue-collared shirt, and a gray vest over it.

College was supposed to be a launchpad for independence. My first year was structured and supportive, but that all changed in the second year. Without the program’s scaffolding, I felt lost. The challenges I faced, compounded by a lack of adequate support, led to instability, isolation, and a deep sense of unease. My access needs, things I needed to function effectively, simply weren’t being met. Desperate for answers, I dropped out and sought additional support.

A turning point came when I met with an educational counselor. They not only helped me get diagnosed, but also asked a question that changed everything: “Have you considered living alone?” Thankfully, with the unwavering support of my family, I was able to move into my own place. This wasn’t just any place – it was close to school and support systems, but also offered the crucial element of independence. In this space, I could finally focus on self-regulation and meeting my access needs in ever-evolving ways. Simple modifications, like a privacy fence, low-maintenance landscaping, and soundproofing, made a world of difference.

My story highlights a critical gap in our current system. Why should the path to independence be paved with such uncertainty? Imagine a world where individuals, like myself on the autism spectrum, have the resources to meet their own needs directly. This could include direct financial support for accessible housing, alongside a robust network of supportive services. This network should be designed with flexibility and informed by the diverse needs of people with disabilities, ensuring everyone has the right to choose the path that works best for them.

The current system often presents a false choice – institutionalized care or being left to fend for oneself. My story proves this doesn’t have to be the case. We can, and should, strive for a system that empowers individuals with the tools they need to thrive. Investment in accessible housing and supportive services is not just the right thing to do, it’s a social and economic imperative. By ensuring everyone has a secure foundation, we unlock the full potential of our communities.

Just as having a diagnosis was a turning point for me, so too can a shift in policy be a turning point for countless others. Let’s work together to create a system that offers not just support but the opportunity for all to find their place, to flourish, and to contribute.

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